California Health and Human Services Data Exchange Framework
Governor Newsom’s signature on AB 133 puts California on the path to building its first-ever, statewide Health and Human Services Data Exchange Framework — a single data sharing agreement and common set of policies and procedures that will govern the exchange of health information among health care entities and government agencies beginning in June 2024.
Read the news release announcing the formation of a Stakeholder Advisory Group that will guide the development of the Data Exchange Framework.
To receive updates on the development of the Data Exchange Framework, email CDII@chhs.ca.gov.
CHHS is seeking individuals with technical or legal health and cross-sector data sharing experience (e.g., developing or implementing CalDURSA) to support a Data Sharing Agreement Subcommittee of the CHHS Data Exchange Framework Advisory Group. Interested stakeholders are invited to complete the Statement of Interest form to volunteer their participation by Friday, October 1, 2021.
A statewide data exchange framework is needed to ensure all Californians — and the health and human service providers and organizations that care for them — have timely, secure access to the electronic information necessary to address their health and social needs. Read more about California’s vision for safely sharing health and human services data in this blog from CHHS chief data officer and CDII director John Ohanian: Shared Information Has the Power to Change Californians’ Lives for the Better.
Initial Data Exchange Framework
By July 1, 2022, the state will establish a single data sharing agreement and common set of policies and procedures that will govern and require the exchange of health information among health care entities and government agencies in California. This effort will be guided by a Stakeholder Advisory Group, which will provide information and advice to CHHS.
Public health/social services integration
By January 31, 2023, CHHS and the California State Association of Counties will encourage as many county health, public health, and social services providers to connect to the Data Exchange Framework—with all state and local public health agencies exchanging health information in real time with participating health care entities.
Data sharing agreement
By January, 31, 2023, the Data Exchange Framework data sharing agreement will be executed by the following entities: General acute care hospitals, physician organizations and medical groups, skilled nursing facilities, health service plans and disability insurers, Medi-Cal managed care plans, clinical laboratories, and acute psychiatric hospitals.
By January 31, 2024, all participating entities will exchange health information or provide access to health information to and from every other entity in real time for treatment, payment, or health care operations.
While parts of California’s health care system rely on coordinated, interoperable electronic systems, other parts rely on decentralized, manual, and siloed systems of clinical and administrative data exchange that is voluntary in many situations. This voluntary patchwork imposes burdens on providers and patients, limits the health care ecosystem from making material advances in equity and quality, and functionally inhibits patient access to personalized, longitudinal health records. Further, a lack of clear policies and requirements to share data between payers, providers, hospitals, and public health systems is a significant hindrance to addressing public health crises, as demonstrated by challenges inherent to the COVID-19 pandemic.
Despite the widespread availability of secure electronic data transfer, a small but important minority of Californians’ medical information is stored or shared on paper. When that medical information is shared between providers, much of it happens by mail, fax, or, most likely, by the patients themselves, who frequently carry their records from appointment to appointment. While electronic health information exchange cannot replace provider-patient communication, it can greatly improve the completeness of patient records, which has a significant effect on health and wellness outcomes, as past history, current medications, and other information are jointly reviewed during appointments.
Social and economic factors distinct from medical care are powerful predictors of health outcomes and disease burden throughout a person’s life. From a population health perspective, this means that evidence-based policies that affect the broader conditions in which people are born, grow, and live can exert a powerful influence on health and well-being. From an operational perspective, data-driven efforts to better coordinate human and social supports with the medical and health care sectors provide opportunities to deliver services that are more client centered, efficient, effective, and tailored.
- August 31, 2021 Data Exchange Framework Stakeholder Advisory Group Meeting #1 9:30am – 12:00pm
- October 7, 2021 Data Exchange Framework Stakeholder Advisory Group Meeting #2 10:00am – 12:30pm
- November 10, 2021 Data Exchange Framework Stakeholder Advisory Group Meeting #3 10:00am – 12:30pm
- December 14, 2021 Data Exchange Framework Stakeholder Advisory Group Meeting #4 10:00am – 12:30pm
- January 13, 2022 Data Exchange Framework Stakeholder Advisory Group Meeting #5 10:00am – 12:30pm
- March 3, 2022 Data Exchange Framework Stakeholder Advisory Group Meeting #6 10:00am – 12:30pm
- April 7, 2022 Data Exchange Framework Stakeholder Advisory Group Meeting #7 10:00am – 12:30pm (Tentative)
- May 18, 2022 Data Exchange Framework Stakeholder Advisory Group Meeting #8 10:00am – 12:30pm (Tentative)
- June 23, 2022 Data Exchange Framework Stakeholder Advisory Group Meeting #9 10:00am – 12:30pm (Tentative)
Data Exchange Framework Stakeholder Advisory Group Meeting #1
Stakeholder Advisory Group Members
- Mark Ghaly (Chair), California Health and Human Services Agency
- Greg A. Adams, Kaiser Permanente
- Jamie Almanza, Bay Area Community Services
- Charles Bacchi, California Association of Health Plans
- Robert Beaudry, California Primary Care Association
- Michelle Doty Cabrera, County Behavioral Health Directors Association of California
- Colleen Chawla, County Health Executives Association of California
- Dustin Corcoran, California Medical Association
- Craig Cornett, California Association of Health Facilities
- Carmela Coyle, California Hospital Association
- Don Crane, Americas Physician Groups
- Liz Gibboney, Partnership HealthPlan of California
- Lori Hack, California Association of Health Information Exchanges
- Alma Hernández, SEIU California
- Sandra Hernández, California Health Care Foundation
- Linnea Koopmans, Local Health Plans of California
- David Lindeman, UC Center for Information Technology Research in the Interest of Society
- Paul Markovich, Blue Shield of California
- Ali Modaressi, Los Angeles Network for Enhanced Services
- Erica Murray, California Association of Public Hospitals and Health Systems
- Art Pulaski, California Labor Federation
- Karen Relucio, California Conference of Local Health Officers
- Mark Savage, Savage Consulting
- Kiran Savage-Sangwan, California Pan-Ethnic Health Network
- Cathy Senderling-McDonald, County Welfare Directors Association
- Claudia Williams, Manifest MedEx
- Anthony E. Wright, Health Access California
- William York, San Diego Community Information Exchange
State Agency Partners
In addition to the new Stakeholder Advisory Group, CHHS will also collaborate closely and bring to bear the expertise of a number of other state agencies, whose work will be critical to the success of the Data Exchange Framework:
- California Business, Consumer Services and Housing Agency
- California Health Benefit Exchange
- California Public Employees’ Retirement System
- Department of Aging
- Department of Corrections and Rehabilitation
- Department of Developmental Services
- Department of Health Care Access and Information
- Department of Health Care Services
- Department of Insurance
- Department of Managed Health Care
- Department of Public Health
- Department of Social Services
- Emergency Medical Services Authority